Other organizations that can help a bereaved DIPG family
DIPG INFO & SUPPORT
- DIPG Navigator
- DIPG.org: The Diffuse Intrinsic Pontine Glioma Resource Network
- DIPG Registry
- DIPG Research FB Group
- DIPG Parents Sanctuary FB Group (for currently fighting and bereaved)
- DIPG Angels for Grieving Families FB Group
- DIPG Awareness for Family & Friends FB Group
- Grandparents of DIPG Angels FB Group
- Papas el contra DIPG FB Group (DIPG en Español)
- DIPG Scandinavia FB Group
- DIPG Philippines FB Page
DIPG RESEARCH
- ChadTough Defeat DIPG Foundation
- Michael Mosier Defeat DIPG Foundation
- The Cure Starts Now
- Abbie’s Army (UK)
- RUN DIPG (Australia)
- DIPG Collaborative
- DIPG Registry
- DIPG Research FB Group
FINANCIAL ASSISTANCE FOR BEREAVED DIPG FAMILIES
Please note: Some of these are for DIPG only whereas others are for all brain tumor or pediatric cancer families, or all families that have experienced a child’s death. Most of them have a time limit of six months to a year after a child’s death; some are on a case-by-case basis.
- Alana’s Foundation
- Gabriella’s Smile Foundation
- Smiles for Sophie Forever Foundation
- Hogs for the Cause
- Reflections of Grace
- The TEARS Foundation
- Rett’s Roost Family Grants
BEREAVEMENT RETREATS AND TRIPS
Please note: All of these are open to all bereaved cancer parents and/or families, or all families who have lost a child. We are the only foundation providing DIPG-specific retreats for the uniqueness of experiencing this particular cancer.
- Camp Sunshine
- Camp Sol Family Retreat Weekend
- Charlie’s Guys (sibling experiences)
- Eva’s Angels (UK)
- Faith’s Lodge
- Healing Hearts Family Bereavement Camp
- Hope & Healing Bereavement Retreat
- Leaps of Love Good Grief Getaway
- Islastones Foundation (UK)
- Jacob’s Heart Forever Loved Retreat
- Momcology Retreats
- Merlin’s Magic Wand
- Rett’s Roost
- Team Campbell Foundation (all-expenses paid trip to the Caribbean for bereaved couples)
- Why Me Sherry’s House Healing Retreat
BEREAVED SIBLING CAMPS
- Camp Erin
- Camp Good Grief
- Comfort Zone Camp
- Experience Camp
BEREAVED SIBLING SCHOLARSHIPS
- Northwestern Mutual Childhood Cancer Sibling Scholarship Program
- The Happy Jack Fund Memorial Scholarship
BEREAVED FAMILY SUPPORT
- Charlie’s Guys
- Compassionate Friends
- Jacob’s Heart Grief Support
- Jessie Rees Foundation (while fighting and bereaved)
- National Alliance for Grieving Children
- Sajni’s Siblings at Lucy’s Love Bus
GENERAL BRAIN TUMORS AND GENERAL PEDIATRIC CANCER
- American Childhood Cancer Organization (ACCO)
- Children’s Brain Tumor Foundation
- Pediatric Brain Tumor Foundation (PBTF)
- Momcology
- St Baldrick’s Foundation
If you know of another resource which should be on this page, please let us know.